Fibromyalgia pain management help on the horizon

Fibromyalgia pain management help on the horizon

 

Any of you that have been following me for a while will know that I have ME and Fibromyalgia, which in layman’s terms means I am permanently exhausted and have constant chronic pain. There are lots of other symptoms but the list is too long to mention.

I was diagnosed in 2009 and after being initially referred for a 12 week management program in London at the start my Borough decided they would not pay for me to go out of borough for treatment.  So, after being diagnosed  I was then left with no input apart from pain relief from my GP.

I spent years on Tramadol until my body totally adjusted and they were having absolutely no effect. Last year when the pain became to difficult to handle my GP switched me to Morphine (slow release) and Oramorph for breakthrough pain during the day. Again as my body adjusted they had less and less effect and the dosages where increased to a point where my GP could not authorise another increase without referring my to a Rheumatologist.

This was probably the best thing that could have happened. I had an appointment in February and she confirmed 18 tender points of Fibro around my body alongside all over body tenderness. That means my body feels bruised so wearing clothing/ shoes etc all hurts as though someone is pressing directly on a bruised piece of skin. From there she referred me to the Fibromyalgia clinic and I had that very long appointment yesterday. It takes all afternoon as you see three separate specialists in different areas who all work together to approach the illness from different angles.

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What happens when you turn 40!

Life begins at 40 is what they say. People can start new things, try new things, and start to get some of their lives back as the children start to get older. For some it can be new relationships, new house, new country even.

I’m not sure what has happened to me since I turned 40 almost 2 yrs ago. Things have changed for me in so many ways:

*I now have a long term illness that stops me from working and makes me quite dependant on others around me

* After years of stating I would NEVER camp I now am a complete camping covert

* I am now old enough to have both of my children at Secondary school ( from September)

* I am now the owner of 2 cats- after never being a ‘cat lover’!

* I have now started knitting and LOVE it

* I know walk using a walking stick!

HOWEVER THERE IS SOMETHING THAT HAS HAPPENED THAT HAS ME CONCERNED FOR MY MENTAL HEALTH………………………………..

* I now LOVE to go FISHING!!!!

I know I know there must be something seriously wrong!

The tip of my fishing rod with a passing duck!!
My first catch………..no laughing allowed!
Each one is getting bigger……YAY

We headed out after the youngest went to school and set up, it was a lovely day and very peaceful. In fact I didn’t want to leave and have already booked my next trip out on the calendar!!

SO LIKE I SAID……………………………………………….I’M WORRIED ABOUT MY MENTAL HEALTH!!!

Crazy things can start to happen when you turn 40…………BE WARNED PEOPLE………BE WARNED!