I thought I’d share a post sharing some tips on staying cool in the summer heat when you have chronic illness. Why? Well because chronic illness and chronic pain make coping with everything much more difficult.
Here in the UK we don’t get a gradual warming of the weather leading up to our summer heat. One day we may be in a jumper and jeans and the next we are in shorts and flip flops! In short, our bodies do not get the gradual acclimatisation that other warmer countries may get as they go through the seasons. It’s not uncommon in the UK to get all 4 seasons in one day.
I think it’s hard enough for people with ‘normal’ working bodies to cope with our heatwaves. But throw in the complications of having a chronic illness that causes having no body temperature control.
I am the worlds worst when it comes to having a positive outlook on using my mobility aids.
It’s been a definite love/hate relationship for me. Even 12 years into my illness I still have that battle.
One of the main things for me personally is the fact my illness is completely invisible to anyone. There’s no plaster casts on my ‘broken joints’. There’s no bruising or swelling visible. I don’t walk with a limp or have a missing limb.
So, to anyone that meets me I look like anyone else. Until they clock that I use a walking stick.
So when I meet people, quite often for the first time, I will be greeted with the usual comment ‘ Oh what have you done?’. Meaning I must have hurt my leg in some spectacular fashion and that I’m now going to tell you the full hilarious story!
When you have long term chronic illness and pain it affects you daily whether you like it or not. There will be days when you desperately want to do all the things, but its just not accessible to you due to pain or fatigue levels. It’s frustrating. So date night ideas when you have chronic illness need organising, or adjusted around what is accessible to you that particular day. Disabled dating is all about keeping it accessible to you.
Dating is an an absolute minefield at the best of times. I’m no longer in that dating minefield. I have been married for over 25 years. I wont pop on my rose tinted specs and tell you those 25 years have been a breeze. I’m a realist so I can tell you they have been worked hard for. That’s one thing I have learnt over that time. It wont be all sunshine and flowers but that makes it all the better when you do have sunshine and flowers.
It’s all too easy to fall into the trap of popping the telly on and scrolling on your phone. But I doubt that will get you anywhere in the dating world. Dating is all about connecting after all. So, even after being together for so long date nights, or days, are a great way of reconnecting for us.