I have had M.E for 3 years now. I was diagnosed early which was fantastic however my NHS borough decided that they would not pay for me to have the available CBT and Pacing treatment available at Kings College Hospital in London.
It truly is an invisible illness. We can look fine to people on the outside however, on the inside our bodies are screaming out with severe muscular pain and overwhelming exhaustion.
I cannot begin to describe how I feel that would make a normal person understand. But if you think of the worst case of flu whilst running a marathon in a swimming pool, you may start to have an understanding how I feel everyday- AND THAT WOULD BE A GOOD DAY!! On a bad day I would not be able to get out of bed.
SO PLEASE TAKE THE TIME TO WATCH THE VIDEO LINK I HAVE INCLUDED BELOW.
It will only take a few minutes of your time but could make all the difference in your understanding if you know someone who suffers.
M.E AWARENESS VIDEO
PLEASE: WE ARE NOT LAZY OR PRETENDING – THIS IS OUR LIVES- WOULD YOU WANT TO LIVE IT!!
I didn’t know about this disease… It’s important to share about this because I think that some people could suffer of it and ignore they had it because they’re accused of lazyness. Be strong, thank you for sharing about that
Thank you it really is frustrating to be seen as lazy!! I never have been and have been brought up that way so I struggle to accept what is happening to me…..there is so much I would like to be doing that just isn’t possible physically 🙂
Thanks for writing this, I have CFS too, it’s a tricky old thing isn’t it ?! Drives me mad most of the time. Lovely to stumble along you blog on LAB.
Hi Lovely of you to pop over. I shall return the favour as it great to be in touch with people who have it- there is also a great online support group on Facebook to with peeps from all over the country.:)