I thought I’d share a post sharing some tips on staying cool in the summer heat when you have chronic illness. Why? Well because chronic illness and chronic pain make coping with everything much more difficult.
Here in the UK we don’t get a gradual warming of the weather leading up to our summer heat. One day we may be in a jumper and jeans and the next we are in shorts and flip flops! In short, our bodies do not get the gradual acclimatisation that other warmer countries may get as they go through the seasons. It’s not uncommon in the UK to get all 4 seasons in one day.
I think it’s hard enough for people with ‘normal’ working bodies to cope with our heatwaves. But throw in the complications of having a chronic illness that causes having no body temperature control.
I started my Invisalign treatment in October 20 and I am now 12 weeks into my 20 week plan and I wanted to share some tips.
My Invisalign trays are changed once a week and I have a dental check up and collect my next set of 4 trays every month. This has worked very well so far and I really cannot believe I am already using week 12.
I can see an incredible difference so far and I am so looking forward to the final result. It makes wearing the trays for AT LEAST 22 hours a day worth it. In fairness with the way everything has worked out, considering all the Covid related madness, I probably couldn’t have chosen a better time to go through the treatment. For a start I pretty much haven’t been out and about at all apart from a few times during OCT/NOV when we could actually physically go into somewhere to eat food. So I do feel I have been less restricted than most people having this treatment in what would be considered ‘normal’ times! Read more
Invisalign Go treatment is something I have lusted after for quite a few years. But as it’s quite an investment we weren’t in a position to even contemplate it until now.
I have been incredibly self conscious about my crooked teeth for as long as I can remember. Even though I had standard plate braces back in the day. Bear in mind I’ve just turned 50, so that gives you an idea of what brace treatment was available way back then. There was also no real form of after care, retainers or anything remotely similar to keep them in their new ‘straight’ position.
It was inevitable that over time those buggers were going to get on the move after a while.
Podcasts are now unbelievably popular and therefore, demand for podcast guests has increased massively. There’s pretty much a podcast for any subject. Review podcasts for film and TV. Conversation podcasts on all sorts of subjects from the lighthearted through to the very serious. There are comedy podcasts, political podcasts, mental health podcast, parenting podcasts, the list goes on and on.
So, unless you’ve been living under a rock you will have heard of them. More than likely you will have listened to a few favourites on a regular basis. With that in mind I’m going to share 5 helpful tips for a podcast guest after my own experiences.
Early this year I was asked to be a podcast guest for the very first time. To talk about working from home/ running your own business while dealing with a chronic illness condition. It was my fellow spoonie Gem over at The Quirky Gem who asked me to be a guest on her own podcast series ‘In Conversation with’.
Staying in control of the housework with chronic illness
There is no denying the cleaning frenzy that has spread like wild fire online over the last few months. So I would like to say from the start this is NOT another jumping on the bandwagon post, but more of a recommendation of what I found has worked for me. First of all I would like to make it clear that I’m not judging any of these accounts or slating one because I like another. I’m firmly in the camp that there is enough room online for everyone doing their own thing in the way that suits them. This is just a recommendation on how to stay in control of the housework with chronic illness that totally works for me in regards to my illness and pain levels.
I make no secret of the fact I have chronic illness which sees me deal with chronic, persistent pain daily. In fact I cannot remember the last day I was pain free. Not to be flippant but if I woke up pain free I would probably think I had died.
Anyway, before this HUGE cleaning frenzy craze took hold of everyone I literally stumbled upon an Instagram account that was less about just cleaning random things at any one time and more about a cleaning method that spanned over the week. It’s been well thought out and covered the whole house on a weekly rotation while keeping to a minimal amount of time. Just 30 minutes a day in this case. The more I read the more I knew this method would work for me.
My son is now in his 3rd year at uni ( he still has another year to complete) and I have picked up a few helpful tips along the way on how parents can prepare their teens for their first year of uni.
I was in your shoes a few years ago worrying myself to death about how he was going to cope at uni, cook for himself, budget his money and ultimately not get himself into any awful situations or get hurt!! ( I know, but c’mon they are our little babies after all).
So having learned some things along the way I thought I would share my wisdom to either save you a crap load of money ( no they really do not need everything AND the kitchen sink) or reassure you that your little baby will be just FINE!
This year has seen my eldest returning to uni but this time he will be house sharing with four other students, friends he has made while living in student halls last year. They have had a year of independence, almost sheltered in a way, by living in a corridor with 11 others and sharing a kitchen and a couple of bathrooms. They work out differences on their own and gravitate towards other students that they get on with or become friends with. As parents, although it breaks our hearts to see them go, it feels like they are still being supported if they are living on campus with all the facilities around them. My eldest goes to Sussex university and it was well equipped with a large Co op, a large cafe, launderette, bar, pharmacy and a GP surgery! I know not all uni’s are the same and some are spread around towns on different areas instead. Read more
Any of you that have been following me for a while will know that I have ME and Fibromyalgia, which in layman’s terms means I am permanently exhausted and have constant chronic pain. There are lots of other symptoms but the list is too long to mention.
I was diagnosed in 2009 and after being initially referred for a 12 week management program in London at the start my Borough decided they would not pay for me to go out of borough for treatment. So, after being diagnosed I was then left with no input apart from pain relief from my GP.
I spent years on Tramadol until my body totally adjusted and they were having absolutely no effect. Last year when the pain became to difficult to handle my GP switched me to Morphine (slow release) and Oramorph for breakthrough pain during the day. Again as my body adjusted they had less and less effect and the dosages where increased to a point where my GP could not authorise another increase without referring my to a Rheumatologist.
This was probably the best thing that could have happened. I had an appointment in February and she confirmed 18 tender points of Fibro around my body alongside all over body tenderness. That means my body feels bruised so wearing clothing/ shoes etc all hurts as though someone is pressing directly on a bruised piece of skin. From there she referred me to the Fibromyalgia clinic and I had that very long appointment yesterday. It takes all afternoon as you see three separate specialists in different areas who all work together to approach the illness from different angles.
Over the years whenever I have started a diet or healthy eating plan I find myself extremely determined and aggressive at the beginning, meal prep and enthusiastic organisation takes over when the determination is strong. Inevitably along the way, like most of us, life catches up and we find ourselves at the office without lunch as the kids were running late for school and there just wasn’t enough time, or getting home late from work with no dinner planned. This is usually the part where we give in to ordering takeaway, allowing the cravings for pizza and carbs to consume us. If we look at eating out in a different light, perhaps those crazy days of no meal planning won’t result in diet ruin.
My eldest baby left us on 12th September this year to start his university adventures. I didn’t want to write about it straight away ( or before) as my head was literally all over the place with a huge mixture of emotions. Yes I was unbelievably proud of him, but I was, as most mum’s would be, absolutely terrified that he wasn’t going to cope! It was so hard to leave him there on his joining weekend although we are lucky enough to be relatively close enough to go there for a day visit- which we did the next day to take him for a final family meal before leaving him properly.
Almost a month into his new independent life and I am super pleased to say that he is not only coping very well but he is also loving his new found freedom. He has done several weekly shops now ( he loves the fact that he has an Aldi near him) and also done a few clothes washes too…………….this probably amazes me the most. He has also got himself a part time promotions job as well so is now earning a few extra pounds here and there to boost his weekly spending amount.